The Importance Of
Patient Education
We
believe that Education is critical when dealing with Chiari. Informed
parents are able to intelligently select a doctor, understand the issues
and choices that must be made, be proactive, and most importantly, take
charge of their child's healthcare. The Conquer Pediatric Chiari website
offers a variety of educational materials, ranging from broad overviews to
research articles on specific subjects to practical tips. We
encourage everyone to take the time to explore the site and arm yourself
with the knowledge you need. Note, these sections are updated
regularly with new information.
What Is
Chiari?:
Presentation providing
a basic overview of Chiari in an easy to follow format. -
Coming Soon
Common Questions:
The most common questions asked about Chiari; we provide the answers.
Practical Tips:
Real world advice on things like finding a doctor and preparing for
surgery
Research Articles: From the Chiari & Syringomyelia News
on-line newsletter, easy to read summaries of recently published research
on pediatric chiari and related topics
Research Conferences: Video
web archives of presentations from professional research
conferences organized by Conquer Chiari.
Chiari
Malformation: State of the Research & New Directions (November,
2008)
UIC/Conquer Chiari Research Symposium (June, 2007)
Personal Stories: First hand accounts from families who have
faced Chiari.
Good News Stories: Read about kids who have Conquered
Chiari!
Glossary:
Decipher the medical jargon
with these easy to understand definitions.
Patient Education &
Awareness Sheets: Single sheet (PDF) descriptions that you can
email to other people or print out and take with you to the doctor; great
for patients to give to medical professionals not familiar with Chiari and
syringomyelia.
