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Faces of
Chiari
See More Faces
Placing the mouse over a picture will show the child's name. Clicking on a picture will open their story in new window (not all
pictures).
Do you have a Chiari Face you would like to share?
E-mail the picture to
director@conquerchiari.org
Please state clearly that we have permission to post the picture.
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Many Chiari kids look fine on the outside....
because the problem is inside:
Chiari Malformation
(Arnold-Chiari) is a serious neurological disorder where the bottom
part of the brain, the cerebellum, descends out of the skull and crowds
the spinal cord, putting pressure on both the brain and spine which can
cause
many symptoms.
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News &
Events
!!! Breaking News!!! President Obama
Signs NIH Budget Bill With a Focus on Chiari Research
The Second Annual Pediatric Gala Raised Over $50,000 For Research (2010
Gala Set for Oct. 15th)
Recent Research Publications
Endoscope Used to Minimize Surgery in Children
TCI Publishes Preliminary Results on TCS Surgery
Craniotomy vs Craniectomy
Conquer Chiari
Visit the Main Conquer Chiari Site
Conquer
Chiari:
A Patient's Guide
Order (320 pages, $19.95) |
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Quick Facts About Pediatric Chiari:
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Although it is estimated that
Chiari affects about 300,000 people in the US, it is not known how many
children are affected.
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Up to 30% of children born with
Spina Bifida also have Chiari.
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Trouble swallowing is one of the
most common symptoms in young children with Chiari, which can lead to
growth problems.
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Older children with Chiari often
have scoliosis, an abnormal curvature of the spine.
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The cognitive, emotional,
behavioral, and developmental effects of Chiari have not been studied
extensively, and are not well understood.
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There is no real cure for Chiari,
rather many children have to undergo a painful surgery in an attempt to
alleviate symptoms, and some children end up having multiple surgeries.
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There have been reports of sudden
death related to Chiari, for example due to respiratory issues, but it
is not clear how often this occurs.
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Chiari can place a tremendous physical, mental, emotional, and economic
strain on patients and their families.
The C&S Patient Education Foundation, known
informally as Conquer Pediatric Chiari (and Conquer Chiari), is a
501(c)(3) public charity dedicated to improving the experiences and
outcomes of Chiari and syringomyelia patients through education,
awareness, and research.
More About Conquer Pediatric Chiari
Our Tax
ID#: 20-0904691. Do you
have ideas for features or content which will help
Chiari families? We want to hear from you...
CONTACT US: director@conquerchiari.org, 724-940-0116
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